PRIDEnet is a national network of individuals and organizations that actively engage our community in every stage of how LGBTQ+ health research is created, analyzed, and shared from The PRIDE Study. Through our Community Partners and an advisory group of health care specialists known as the Participant Advisory Committee (PAC), PRIDEnet builds on decades of work by activists, health advocates, service providers, and researchers to improve the health and well-being of LGBTQ+ communities.
PRIDEnet is funded by Stanford University and the National Institutes of Health and is staffed by Cassie Armea-Warren, Mahri Bahati, Zubin Dastur, Micah Lubensky, Daniel Moretti, Ana Rescate and JT Williams.
As a participant, PRIDEnet works to ensure your annual participation with the study is an enjoyable experience:
We want you to be included. Many LGBTQ+ people have difficulty accessing adequate care and achieving optimal health because of a long history of discrimination, stigma, and medical neglect. Many are also marginalized from health care due to other bias related to age, race and ethnicity, language, class, or legal status.
PRIDEnet wants to know about these experiences in a way most accessible for you. That is why joining The PRIDE Study can be done by telephone or on any web-enabled device (computer, tablet, or smartphone).
We want you to feel welcome. Coming out, many LGBTQ+ people experience rejection from families, friends, and society. Despite these challenges, we remain resilient. Our communities possess a hard-earned wisdom from never backing down in the face of adversity.
PRIDEnet seeks to actively incorporate your input to help doctors and researchers develop a better understanding of the physical, mental, and social health needs of our communities.
We want you to be heard. Like many other groups, the voices of LGBTQ+ people have been left out of research. Where research has included us in the past, results oftentimes stigmatized us further or were used to the detriment of our community. As a result, we know less about our health and ways to provide the best care. PRIDEnet strives to engage your voices in an intentional way by seeking, collecting, and incorporating input from our Community Partners and PAC members.
In catalyzing LGBTQ+ health research, how we do our work is as important to us as what we do.
We develop give-and-take relationships.
As participants, we want you to benefit from our study as much as our projects benefit from your input.
We recognize complex identities and communities.
We respect that many of you belong to multiple communities and hold many identities.
We create equity.
Each of our communities have unique health experiences and needs. Our goal is to work with you in the most appropriate way and not in the same way.
We create transparency.
We want you to know what we’re up to and strive to communicate openly and clearly.
Oscar Anderson is currently a Senior Research Communications Advisor at AARP, where he has spent 15 years conducting research on older adults and aging. He is focused primarily on technology and media, mental health, and maintaining social connections throughout the lifespan. He is an advocate for research on LGBTQ older adults and has worked to ensure LGBTQ respondents are represented in the research of AARP and its partners. Oscar is an incoming MSN student at Yale School of Nursing. After graduation, he hopes to work in primary care specializing in transgender medicine in order to serve the gender diverse community. He hopes to help address the community's critical need for more compassionate, competent healthcare.
Devin Hursey is an advocate for people living with HIV and public health, from Kansas City Missouri, currently pursuing dual master’s degrees in Public Health and strategic communications at the University of Missouri Columbia. In 2019, Hursey was honored as one of the 40 under 40 in public health by de Beaumont. His local and state work includes: legislative advocacy with the Missouri HIV Justice Coalition, and board membership of Blaqout KC. In addition, Hursey is a steering committee member of the U.S. People Living with HIV Caucus, and a steering committee member of MPACT global action for gay men’s health and rights. Hursey was formerly an appointed member of the CDC/HRSA Advisory Committee on HIV and Viral Hepatitis.
Joelle Maslak is employed as a network engineer for a streaming video company, where she is a leader for the Trans* employee resource group. She has over 20 years of neurodiversity advocacy experience, and is particularly interested in the intersection of gender and neurodiversity. She is also involved in AASPIRE (Academic Autism Spectrum Partnership in Research and Education) team. She co-founded and facilitates a peer support group for trans people on the spectrum. She is currently working towards a second degree in Gender, Women, and Sexuality Studies at Metropolitan State University of Denver.
Kara Sprague (she/her) is the Director of Strategy & Impact at SAGE, the nation’s oldest and largest organization dedicated to improving the lives of LGBT+ older adults, where she has worked since 2014. In this role, Kara is responsible for implementation and measurement of SAGE’s Strategic Plan, providing consultation on program evaluation and impact assessment across the organization, and promotion of a data-informed culture. Prior to SAGE, Kara worked in a variety of program evaluation and implementation roles across HIV services and international development. Kara has a B.A. in Sociology from American University and an M.S.W. from Fordham University.
David Utuone is a gay Sāmoan HIV advocate and community organizer residing in the traditional Tongva and Gabrieleno lands (presently known as San Bernardino, California). He is the current director of Mai Le Pogisā (Out of the Darkness) at a community based organization called The Young Serving All Mankind Our Alofa (SAMOA). He has dedicated his life to raising better awareness and cognizance of sexual health and queer identities both in his local Inland Empire and Pacific Islander communities.
Donald M. Bell identifies as a 72 year old single, cisgender, pro feminist, gay or SGL (Same Gender Loving) man of African, Indigenous, and Scots-Irish roots. Don is a third-generation native-born Chicagoan, Southsider, and lifelong White Sox fan.
He is a retired professional in Higher Education Administration/Student Affairs; certified in HIV/AIDS counseling, health education, and outreach; and IDCFS Social Worker. Now at the end of a long hiatus he plans to re-enter the work field in the area of Diversity, Equity, and Inclusion. He has become a recognized resource in the area of aging, in general, and LGBT+ aging in particular. He often presents on those and related intersectional social justice issues.
Continuing his lifelong dedication to advocacy and activism, he assumes a leadership role in several social justice organizations. He is a founding member of the National Leadership Council of the National Organization for Men Against Sexism (NOMAS), the nation's oldest pro feminist men's organization. He is a member of the Board of Directors of The Village Chicago, the largest urban village in the national Village-to-Village Aging Network. He also sits on the Boards of the Jane Addams Senior Caucus and One Roof Chicago, the developers of a proposed intergenerational LGBT-riendly residence for the South Side of Chicago. And finally, he is the nominee of AARP Illinois to Governor JB Pritzker to sit on the newly established Illinois State Commission on LGBTQ+ Aging.
Don is a resident of Town Hall Apartments, Chicago's first and the nation's fourth LGBT-friendly senior residence. And in his spare time, he continues to be the proud father of two adult sons, and seven grandchildren. Life is full!
Bria Brown-King uses they and she pronouns and is a Black, queer, masculine-presenting, non-binary, and intersex person. Bria works as the Director of Engagement for interACT Advocates for Intersex Youth. Bria got their start in intersex advocacy in 2018 as a Youth advocate, and in 2019 they became the first openly intersex person to speak about intersex issues on the steps of the Supreme Court. Bria now serves on multiple advisory boards, representing intersex people both nationally and internationally.
Rosaia Shepard grew up in Seattle’s Colored District, where, as a student activist in the 1960s, she fought racism, sexism, sexual abuse, as well as sexual orientation discrimination. Over the decades, ableism and ageism were added to the list. Rosaia has held many management, advising, and consulting positions for various enterprises including the Internal Revenue Service, the University of Washington, and Deloitte. Recently retired in Metro Atlanta, she writes nonfiction and volunteers her time supporting Georgia political candidates who advance LGBTQIAP rights. Rosaia holds a B.A. in African American Studies and Literature from the University of Washington and an MBA from the University of Arizona.
Miranda J. Stinson is a queer asexual woman living in New York City, where she has worked in book publishing for the last five years. She is a founding member of Disability in Publishing, a new organization that advocates for disabled employees in the industry, inspired by the work of organizations such as People of Color in Publishing and Latinx in Publishing. As a neurodivergent person who is also navigating chronic illness, Miranda is a fervent believer in making health education accessible so that disabled people can more confidently advocate for themselves in healthcare and research settings.
Miranda also has longstanding ties (though not by heritage) to the Irish community in New York, including serving on the organizing committee for the St. Pat’s for All Parade, NYC’s longest running LGBTQ-inclusive St. Patrick’s Day celebration. She’s excited to broaden her connections into working with other diaspora groups in the city as well.
Paul Vila is a freelance web developer and writer. He attended New College of Florida, where he graduated with a BA in Political Science and Environmental Studies. His academic work has focused on marrying scientific literacy and in-depth understandings of sociopolitical structures with the goal of disassembling systemic injustices. With that in mind, much of his current activist work centers on outreach for LGBTQ+ health issues, with an emphasis on Latinx communities.
Jeffrey Worthington, known under his moniker "Jaycee Dubyuh", is the founder of the Gaymer Allied People of Color. This movement has one simple mission: to build, house, and protect black and brown queer bodies as they intersect with normative spaces in technology and fandom. Coupled with his decade of experience as a tournament and esports organizer, Jaycee continues to spread awareness of his brand and consult with those in need of guidance through the esports community. As PRIDEnet becomes the latest addition, Jaycee extends a resume of being featured in interviews and panel discussions from several organizations and educational institutions. He looks forward to creating new avenues that will conjoin PRIDEnet with a unique gaming perspective that minorities will be certain to enjoy and learn from.