Community Engagement: PRIDEnet
At PRIDEnet, we engage LGBTQ+ communities to participate in health research.
PRIDEnet is a national network of individuals and organizations that actively engage our community in every stage of how LGBTQ+ health research is created, analyzed, and shared from The PRIDE Study. Through our Community Partners and an advisory group of health care specialists known as the Participant Advisory Committee (PAC), PRIDEnet builds on decades of work by activists, health advocates, service providers, and researchers to improve the health and well-being of LGBTQ+ communities.
PRIDEnet is funded by Stanford University and the National Institutes of Health and is staffed by Cassie Armea-Warren, Mahri Bahati, Zubin Dastur, Micah Lubensky, Daniel Moretti, Ana Rescate and JT Williams.
As a participant, PRIDEnet works to ensure your annual participation with the study is an enjoyable experience:
Access
We want you to be included. Many LGBTQ+ people have difficulty accessing adequate care and achieving optimal health because of a long history of discrimination, stigma, and medical neglect. Many are also marginalized from health care due to other bias related to age, race and ethnicity, language, class, or legal status.
PRIDEnet wants to know about these experiences in a way most accessible for you. That is why joining The PRIDE Study can be done by telephone or on any web-enabled device (computer, tablet, or smartphone).
Belonging
We want you to feel welcome. Coming out, many LGBTQ+ people experience rejection from families, friends, and society. Despite these challenges, we remain resilient. Our communities possess a hard-earned wisdom from never backing down in the face of adversity.
PRIDEnet seeks to actively incorporate your input to help doctors and researchers develop a better understanding of the physical, mental, and social health needs of our communities.
Meaningful participation
We want you to be heard. Like many other groups, the voices of LGBTQ+ people have been left out of research. Where research has included us in the past, results oftentimes stigmatized us further or were used to the detriment of our community. As a result, we know less about our health and ways to provide the best care. PRIDEnet strives to engage your voices in an intentional way by seeking, collecting, and incorporating input from our Community Partners and PAC members.
Our strategic values:
In catalyzing LGBTQ+ health research, how we do our work is as important to us as what we do.
1
We develop give-and-take relationships.
As participants, we want you to benefit from our study as much as our projects benefit from your input.
2
We recognize complex identities and communities.
We respect that many of you belong to multiple communities and hold many identities.
3
We create equity.
Each of our communities have unique health experiences and needs. Our goal is to work with you in the most appropriate way and not in the same way.
4
We create transparency.
We want you to know what we’re up to and strive to communicate openly and clearly.
PRIDEnet Participant Advisory Committee (PAC)
Oscar Anderson
Oscar Anderson
Oscar Anderson is currently a Senior Research Communications Advisor at AARP, where he has spent 15 years conducting research on older adults and aging. He is focused primarily on technology and media, mental health, and maintaining social connections throughout the lifespan. He is an advocate for research on LGBTQ older adults and has worked to ensure LGBTQ respondents are represented in the research of AARP and its partners. Oscar is an incoming MSN student at Yale School of Nursing. After graduation, he hopes to work in primary care specializing in transgender medicine in order to serve the gender diverse community. He hopes to help address the community's critical need for more compassionate, competent healthcare.
Loree Cook-Daniels, MS
Loree Cook-Daniels, MS
Loree Cook-Daniels, FORGE’s Policy and Program Director, has helped design and co-facilitate FORGE’s multiple in-person and virtual support groups, research studies, and programs since 2000. She has been involved in advocacy, research, training, and services for LGBT populations since 1975, and is nationally-known for her writing, training, and policy work on LGBT aging, trauma and trauma recovery, and transgender issues. She co-chairs the Policy Committee of the National Coalition of Anti-Violence Programs and serves on the National LGBT Aging Roundtable. Cook-Daniels holds a B.A. in women’s studies and history, an M.S. in conflict management, and a post-graduate Certificate in trauma counseling.
Richard Greene, MD, MHPE
Richard Greene, MD, MHPE
Richard E. Greene is an Associate Professor of Medicine at New York University School of Medicine. Dr. Greene serves as the Faculty Director of Health Disparities Education at NYU School of Medicine through the Office of Diversity Affairs, and in this role oversees the inclusion of Bias, Diversity, Health Disparities, and LGBTQ topics into the culture and curriculum of NYU’s medical center and educational programs. An active and passionate medical educator, Dr. Greene is also an Associate Program Director of the Primary Care Residency Program and presents extensively on many Primary Care topics including the musculoskeletal physical exam, foundations of primary care medicine and lesbian, gay, bisexual and transgender healthcare disparities. He also serves as an Associate Program Director for the Internal Medicine/Primary Care Residency Program where he teaches on general primary care topics, musculoskeletal medicine, bias, and health disparities. Dr. Greene is the Medical Director for the Pride Health Center at NYC H+H/Bellevue Hospital. Dr. Greene also lectures on a national scale on the topic of LGBTQ Health Care Disparities and Transgender Health. Dr. Greene serves as the Medical Director of the Center for Health, Identity, Behavior and Prevention Studies (CHIBPS) through NYU’s Global Institute of Public Health. He also serves on the Board of Directors of GLMA: Health Professionals Advancing LGBT Equality.
Tari Hanneman, MPA
Tari Hanneman, MPA
Tari Hanneman is the Director of the Health Equality Project at the Human Rights Campaign Foundation. In this role she oversees the annual LGBTQ Healthcare Equality Index (HEI) and other projects related to LGBTQ health and aging.
Tari has over 20 years of experience in the nonprofit and philanthropic sector, primarily focused in the areas of health and women’s issues. Prior to joining HRC, she served as the initial Director of The Women’s Fund of Winston-Salem where she led all aspects of developing The Fund’s programs and brand in the community. Prior to her move to North Carolina, she served in a number of roles at The California Endowment, one of the nation's largest health foundations. She has also worked for elected officials and non-profits focused on the environment, reproductive rights and HIV. She has a Master’s in Public Administration with an emphasis on Nonprofit Management from the University of Southern California, where she also did her undergraduate work.
Tari has over 20 years of experience in the nonprofit and philanthropic sector, primarily focused in the areas of health and women’s issues. Prior to joining HRC, she served as the initial Director of The Women’s Fund of Winston-Salem where she led all aspects of developing The Fund’s programs and brand in the community. Prior to her move to North Carolina, she served in a number of roles at The California Endowment, one of the nation's largest health foundations. She has also worked for elected officials and non-profits focused on the environment, reproductive rights and HIV. She has a Master’s in Public Administration with an emphasis on Nonprofit Management from the University of Southern California, where she also did her undergraduate work.
Devin Hursey
Devin Hursey
Devin Hursey is an advocate for people living with HIV and public health, from Kansas City Missouri, currently pursuing dual master’s degrees in Public Health and strategic communications at the University of Missouri Columbia. In 2019, Hursey was honored as one of the 40 under 40 in public health by de Beaumont. His local and state work includes: legislative advocacy with the Missouri HIV Justice Coalition, and board membership of Blaqout KC. In addition, Hursey is a steering committee member of the U.S. People Living with HIV Caucus, and a steering committee member of MPACT global action for gay men’s health and rights. Hursey was formerly an appointed member of the CDC/HRSA Advisory Committee on HIV and Viral Hepatitis.
Shalonda Ingram
Shalonda Ingram
Leveraging decades of experience, Shalonda Ingram is an innovator who embodies the mantra: Strategize. Design. Produce.
Born and raised in St. Louis, Missouri, Shalonda is committed to cultivating collective consciousness and empowering communities to take actions that transform their circumstances. Shalonda has deployed worldwide to produce transformative experiences with artists, activists, and changemakers. Native to grassroots activism, Shalonda serves social justice, spiritual, and corporate organizations to explore network effect and elevate opportunities for resource sharing. Shalonda influences existing structures to create collaborative environments for communities to thrive. Shalonda is honored to serve Queer+ Communities in the areas of arts presenting, wellness research, placemaking and enterprise development.
Born and raised in St. Louis, Missouri, Shalonda is committed to cultivating collective consciousness and empowering communities to take actions that transform their circumstances. Shalonda has deployed worldwide to produce transformative experiences with artists, activists, and changemakers. Native to grassroots activism, Shalonda serves social justice, spiritual, and corporate organizations to explore network effect and elevate opportunities for resource sharing. Shalonda influences existing structures to create collaborative environments for communities to thrive. Shalonda is honored to serve Queer+ Communities in the areas of arts presenting, wellness research, placemaking and enterprise development.
Joelle Maslak, BA
Joelle Maslak, BA
Joelle Maslak is employed as a network engineer for a streaming video company, where she is a leader for the Trans* employee resource group. She has over 20 years of neurodiversity advocacy experience, and is particularly interested in the intersection of gender and neurodiversity. She is also involved in AASPIRE (Academic Autism Spectrum Partnership in Research and Education) team. She co-founded and facilitates a peer support group for trans people on the spectrum. She is currently working towards a second degree in Gender, Women, and Sexuality Studies at Metropolitan State University of Denver.
Asa Radix, MD, PhD, MPH
Asa Radix, MD, PhD, MPH
Dr. Asa Radix is trained in internal medicine and infectious diseases at the University of Connecticut, and also holds postgraduate qualifications in tropical medicine and public health. Previously Dr. Radix held the position of Associate Medical Director at Callen-Lorde. In addition to having a clinical practice (HIV primary care and transgender health), Asa coordinates electives in LGBT health for medical and nursing students and is an Assistant Clinical Professor of Medicine at NYU and Yale.
Dr. Radix is of West Indian origin and has a special interest in the needs of LGBT populations of immigrant status. For 7 years, Asa was the director of a public health department in the Netherlands Antilles and assisted in the development of insular strategic plans for HIV prevention as well as federal guidelines for communicable disease prevention. Other positions prior to Callen-Lorde have included being the medical director at the University of Hartford, serving a population of 5,000 undergraduates under 24 years of age and being an infectious disease specialist in private practice in West Hartford, Connecticut. A major focus of Dr. Radix’ work has been the development and dissemination of prevention, treatment and care guidelines for HIV+ and at-risk persons in the Caribbean including provision of LGBT cultural competency training to Caribbean healthcare providers.
Dr. Radix is an associate editor of Transgender Health and member of the editorial boards for the International Journal of Transgenderism and the PRN Notebook. Other contributions include being a consultant for the World Health Organization/PAHO on transgender health issues and the co-chair of the WHO/PAHO HIV/STI technical advisory committee. Dr. Radix is the site-PI/co-investigator for 3 NIH/NIMH studies, including a demonstration project on PrEP.
Dr. Radix is of West Indian origin and has a special interest in the needs of LGBT populations of immigrant status. For 7 years, Asa was the director of a public health department in the Netherlands Antilles and assisted in the development of insular strategic plans for HIV prevention as well as federal guidelines for communicable disease prevention. Other positions prior to Callen-Lorde have included being the medical director at the University of Hartford, serving a population of 5,000 undergraduates under 24 years of age and being an infectious disease specialist in private practice in West Hartford, Connecticut. A major focus of Dr. Radix’ work has been the development and dissemination of prevention, treatment and care guidelines for HIV+ and at-risk persons in the Caribbean including provision of LGBT cultural competency training to Caribbean healthcare providers.
Dr. Radix is an associate editor of Transgender Health and member of the editorial boards for the International Journal of Transgenderism and the PRN Notebook. Other contributions include being a consultant for the World Health Organization/PAHO on transgender health issues and the co-chair of the WHO/PAHO HIV/STI technical advisory committee. Dr. Radix is the site-PI/co-investigator for 3 NIH/NIMH studies, including a demonstration project on PrEP.
Ramón Ramirez
Ramón Ramirez
Ramón Ramirez has been working with the community for over 25 years in San Francisco and Los Angeles. Ramón has worked with many communities such as: monolingual Spanish speaking, LGBTQI, African American, Transgender, homeless, drug user and other. With a long experience as an HIV testing and prevention counselor, clinical health educator, entertainer and activist in the community, Ramón has been able to experience firsthand the disparities these communities experience from both sides of the spectrum. Ramón works for a large medical provider company as a Clinical Health Educator helping patients by providing education on safer sex, PrEP, weight management, diabetes diagnosis and healthy habits among other topics. Ramón wants to bring to the table experience living as a gay Mexican American and active community member.
Javier Ríos, MA
Javier Ríos, MA
Javier Ríos was born and raised in Santa Fe, New Mexico and is a New Mexican of diverse Irish, Mexican, and LGBTQ background. Javier joined UNM Truman Health Services in the Manzano School Based Health Center as the Health Educator in October 2016, bringing 11 years of non-profit and government experience focused in health equity, HIV/AIDS prevention, harm reduction, immigrant health, and cultural humility. In 2017 and 2013 Javier participated in the U.S.-Mexico Border Health Commission program Líderes a través de las Fronteras/Leaders across Borders addressing binational and border health. Since 2005 Javier has worked in HIV/AIDS prevention with LGBTQ+ communities of color focusing in community organizing, outreach, and education. His community recognitions include the 2013 Pride and Equality Vincent R. Johnson Models of Hope Award, the 2012 NMCPAG Kahlo Benavidez Leadership Award, and service as a 2012 HIV/AIDS Embajador/Ambassador for the National Latino AIDS Action Network at the XIX International AIDS Conference in Washington D.C. Currently Javier is the Communications Chair of the National Partnership for Action to End Health Disparities Region VI Southwest RHEC, as well as the co-chair for the Immigrant Committee of the City of Santa Fe. Javier earned his M.A. in Spanish: Southwest Studies from the University of New Mexico in 2005 where he taught Spanish as a Heritage Language. Javier received his B.A. from Creighton University in 2001. Javier is excited to be a part of The PRIDE Study team that cultivates health awareness of our diverse LGBTQ+ communities.
Karalin Sprague, MSW
Karalin Sprague, MSW
Kara Sprague (she/her) is the Director of Strategy & Impact at SAGE, the nation’s oldest and largest organization dedicated to improving the lives of LGBT+ older adults, where she has worked since 2014. In this role, Kara is responsible for implementation and measurement of SAGE’s Strategic Plan, providing consultation on program evaluation and impact assessment across the organization, and promotion of a data-informed culture. Prior to SAGE, Kara worked in a variety of program evaluation and implementation roles across HIV services and international development. Kara has a B.A. in Sociology from American University and an M.S.W. from Fordham University.
David Utuone
David Utuone
David Utuone is a gay Sāmoan HIV advocate and community organizer residing in the traditional Tongva and Gabrieleno lands (presently known as San Bernardino, California). He is the current director of Mai Le Pogisā (Out of the Darkness) at a community based organization called The Young Serving All Mankind Our Alofa (SAMOA). He has dedicated his life to raising better awareness and cognizance of sexual health and queer identities both in his local Inland Empire and Pacific Islander communities.
PRIDEnet Ambassadors
Donald M. Bell
Donald M. Bell
Donald M. Bell identifies as a 72 year old single, cisgender, pro feminist, gay or SGL (Same Gender Loving) man of African, Indigenous, and Scots-Irish roots. Don is a third-generation native-born Chicagoan, Southsider, and lifelong White Sox fan.
He is a retired professional in Higher Education Administration/Student Affairs; certified in HIV/AIDS counseling, health education, and outreach; and IDCFS Social Worker. Now at the end of a long hiatus he plans to re-enter the work field in the area of Diversity, Equity, and Inclusion. He has become a recognized resource in the area of aging, in general, and LGBT+ aging in particular. He often presents on those and related intersectional social justice issues.
Continuing his lifelong dedication to advocacy and activism, he assumes a leadership role in several social justice organizations. He is a founding member of the National Leadership Council of the National Organization for Men Against Sexism (NOMAS), the nation's oldest pro feminist men's organization. He is a member of the Board of Directors of The Village Chicago, the largest urban village in the national Village-to-Village Aging Network. He also sits on the Boards of the Jane Addams Senior Caucus and One Roof Chicago, the developers of a proposed intergenerational LGBT-riendly residence for the South Side of Chicago. And finally, he is the nominee of AARP Illinois to Governor JB Pritzker to sit on the newly established Illinois State Commission on LGBTQ+ Aging.
Don is a resident of Town Hall Apartments, Chicago's first and the nation's fourth LGBT-friendly senior residence. And in his spare time, he continues to be the proud father of two adult sons, and seven grandchildren. Life is full!
Bria Brown-King
Bria Brown-King
Bria Brown-King uses they and she pronouns and is a Black, queer, masculine-presenting, non-binary, and intersex person. Bria works as the Director of Engagement for interACT Advocates for Intersex Youth. Bria got their start in intersex advocacy in 2018 as a Youth advocate, and in 2019 they became the first openly intersex person to speak about intersex issues on the steps of the Supreme Court. Bria now serves on multiple advisory boards, representing intersex people both nationally and internationally.
Rosaia Shepard
Rosaia Shepard
Rosaia Shepard grew up in Seattle’s Colored District, where, as a student activist in the 1960s, she fought racism, sexism, sexual abuse, as well as sexual orientation discrimination. Over the decades, ableism and ageism were added to the list. Rosaia has held many management, advising, and consulting positions for various enterprises including the Internal Revenue Service, the University of Washington, and Deloitte. Recently retired in Metro Atlanta, she writes nonfiction and volunteers her time supporting Georgia political candidates who advance LGBTQIAP rights. Rosaia holds a B.A. in African American Studies and Literature from the University of Washington and an MBA from the University of Arizona.
Miranda J. Stinson
Miranda J. Stinson
Miranda J. Stinson is a queer asexual woman living in New York City, where she has worked in book publishing for the last five years. She is a founding member of Disability in Publishing, a new organization that advocates for disabled employees in the industry, inspired by the work of organizations such as People of Color in Publishing and Latinx in Publishing. As a neurodivergent person who is also navigating chronic illness, Miranda is a fervent believer in making health education accessible so that disabled people can more confidently advocate for themselves in healthcare and research settings.
Miranda also has longstanding ties (though not by heritage) to the Irish community in New York, including serving on the organizing committee for the St. Pat’s for All Parade, NYC’s longest running LGBTQ-inclusive St. Patrick’s Day celebration. She’s excited to broaden her connections into working with other diaspora groups in the city as well.
Paul Vila
Paul Vila
Paul Vila is a freelance web developer and writer. He attended New College of Florida, where he graduated with a BA in Political Science and Environmental Studies. His academic work has focused on marrying scientific literacy and in-depth understandings of sociopolitical structures with the goal of disassembling systemic injustices. With that in mind, much of his current activist work centers on outreach for LGBTQ+ health issues, with an emphasis on Latinx communities.
SaVanna Wanzer
SaVanna Wanzer
SaVanna Wanzer has been a DC Trans advocate, HIV educator, and community volunteer for more than 25 years. As the founder of Capital Trans Pride in 2007, she later started May Is? All About Trans in 2018, a series of events celebrating, featuring, and loving transgender people. Designed to educate and build bridges across all communities, SaVanna has grown her vision to include organizations and individuals from across the country. During her many years of service, SaVanna was the first transgender woman to serve on the boards of Whitman-Walker Health and the Capital Pride Alliance. She has also served on the DC Mayor’s LGBTQ Advisory Committee, and started and maintained multiple peer mentoring programs. An active CAP member for NMAC & DCCFAR. Among her many awards, 2019 she was one of Leon Harris’ NBC 4 Heroes and TAGG Magazine, she was recognized with DC’s Black Pride Unsung Hero Award in 2017, Whitman-Walker Legal’s Robert Fenner Urquhart Memorial Award in 2015, and Capital Pride’s Hero Award in 2008. Retired from the federal government, SaVanna remains very active in her community and at Westminster Presbyterian Church in DC. Her future goal to take May Is? “All About Trans” National level.
Jeffery Worthington
Jeffery Worthington
Jeffrey Worthington, known under his moniker "Jaycee Dubyuh", is the founder of the Gaymer Allied People of Color. This movement has one simple mission: to build, house, and protect black and brown queer bodies as they intersect with normative spaces in technology and fandom. Coupled with his decade of experience as a tournament and esports organizer, Jaycee continues to spread awareness of his brand and consult with those in need of guidance through the esports community. As PRIDEnet becomes the latest addition, Jaycee extends a resume of being featured in interviews and panel discussions from several organizations and educational institutions. He looks forward to creating new avenues that will conjoin PRIDEnet with a unique gaming perspective that minorities will be certain to enjoy and learn from.
PRIDEnet Community Partners
PRIDEnet has created formal partnerships with the following community centers, health clinics, and advocacy organizations to improve LGBTQ+ health:
